Monthly Archives: September 2008

Waiting for the other shoe….

I’m not in a good place right now.  I’m having a really hard time actually.  Things are going so well, too and I should be happy but I’m not.  This damn Prader-Willi just hovers over everything like a big, black … Continue reading

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Hope’s sleep study

  Last night Hope & I spent the night at the sleep clinic at Children’s Hospital so that she could have her first post-HGH sleep study (what’s a sleep study?).  She will be checked periodically to make sure that her … Continue reading

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A little of this…a little of that….

Here are some updates… Hope had her 6 month check-up yesterday with her pediatrician.  She weighs 14 lbs. 7 oz. and is 25” long, making her 25% in both height and weight.  The doctor is very pleased with how she … Continue reading

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Lessons from Grace…

 Love is a battlefied. I insisted that I would not have one of those obviously child-inhabited homes.  Grace would have her room, even a playroom…but the toys would stay there.  I did a pretty good job of keeping that promise … Continue reading

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IFSP, CVRC, EPU, etc…

  No, it’s not my Myers-Briggs profile (thats ISTJ, in case you were wondering).  IFSP stands for Individualized Family Service Plan, it is the 0-3 yr. equivalent (roughly) of the IEP (the Individualized Education Plan).  IEP’s are used by school districts to … Continue reading

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Where am I?

So where am I six months later?  I’ve always been more on the introspective side but never so much as I am these days, always evaluating my current mental condition and perspective in relation to the world around me and … Continue reading

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Six

  Hope turned 6 months on this past Thursday (11th).  What a long way we have journeyed since March, a lot of living in a short time.  This week was big for Hope, she started solid foods and enjoys at … Continue reading

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