Monthly Archives: May 2009


The last couple of days have been all about Prader-Willi around here and I’m glad to say that they are over.  Last night we had our very first Prader-Willi Symposium, organized by our local support group.  The pediatric geneticist that … Continue reading

Posted in PWS | Tagged , , | 2 Comments

I’m a twit

Yes, if you haven’t already noticed the catchy new widget below my Facebook icon on the right — I have indeed succumbed to Twitter. Technically we’re called “tweeters.” For those who are not familiar, Twitter is a micro-blogging/social-networking site that … Continue reading

Posted in PWS, Random Stuff | Leave a comment

Still running…

I took a survey today that asked me if I felt better prepared to deal with the issues that my special needs child would face in the future. Um….no. How in the world am I supposed to prepare for that … Continue reading

Posted in Postcards from Holland, PWS | Tagged , , | 3 Comments

Allow me to explain

So, how’d you like Grace’s Mother’s Day post? Here’s the backstory.  Grace loves Harry and the Hendersons — and who (with a soul) doesn’t?  She likes to run through the west side of our backyard, along the perimeter of the … Continue reading

Posted in Funny Business | Leave a comment

Mellow Johnny

I don’t know who this photographer is, but these are amazing pictures of this little guy from one week ago.  He’s doing great, he and Cosmo are getting used to each other and starting to play a fair bit together. … Continue reading

Posted in Scrapbook | 3 Comments

Happy Mother’s Day

by Grace Special Guest Blogger I can do it by mysuf!  I write this blog by mysuf!  You go way mommy! Happy Mudder’s Day.  I miss my family.  I wan go live wit my family in da forest.  You, mommy, … Continue reading

Posted in Funny Business | 1 Comment

All hail the Princess…

Posted in Funny Business, Scrapbook | 4 Comments