Category Archives: Disability

What have we done?

A developmentally disabled kid and a family with two moms in one t.v. show.  It’s so rare that there is a television program that the whole family can enjoy, but once in awhile one comes along.  This week it was … Continue reading

Posted in "The Gays", Disability, Politics | Tagged | 2 Comments

The one where I get all preachy and political and stuff….

Dear Rahm Emanuel, et al…I think you’re pretty much a tool.  I elected a progressive, liberal, Democratic President and so far I haven’t seen him, and I blame you, Rahm.  I actually think it’s a pretty brilliant idea to run … Continue reading

Posted in Disability, Politics | Tagged | 2 Comments

Recommended reading

Yesterday was the last of the four introductory training sessions for the family faculty I have joined through our early intervention organization.  A guest speaker, a mother of a child with many disabilities (now passed), came in and delivered a … Continue reading

Posted in Disability, Postcards from Holland | Tagged , , | 1 Comment

Postcards from Insanity: The reality of a special needs mom

A much more severe case of PWS, at least in infancy, than we have had to deal with.  But I appreciate the honesty of the author. Postcards from Insanity: The reality of a special needs mom.

Posted in Disability, Postcards from Holland, PWS | Tagged | 1 Comment

Prader Willi in the news: Mom Fights For Sons Life

  Children with Prader-Willi Syndrome are considered a higher risk for respiratory infections.  This story came in through my RSS today, we are also with Anthem Blue Cross and were similarly rejected for the Synegis vaccine because Hope has, thus … Continue reading

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IFSP, CVRC, EPU, etc…

  No, it’s not my Myers-Briggs profile (thats ISTJ, in case you were wondering).  IFSP stands for Individualized Family Service Plan, it is the 0-3 yr. equivalent (roughly) of the IEP (the Individualized Education Plan).  IEP’s are used by school districts to … Continue reading

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Phantom pains and the word police…

In case you haven’t heard, there’s a bit of a controversy surrounding the new Ben Stiller movie Tropic Thunder.  I have not seen the film but apparently the word ‘retarded’ is used frequently.  For a little background you can read here.  Again, … Continue reading

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