Tag Archives: Doctors

My Story, pt. 2: The Empire Strikes Back

the saga continues… The “New” Normal (p.s., I still hate this phrase and will slap you if you use it around me) But at least we got to go home.  Two days later, after they showed us how to insert … Continue reading

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My Story, pt. 1

So…I think I’ve mentioned before that I am a part of a “speaker’s bureau” of sorts comprised of parents of children with disabilities.  A few weeks ago I was asked to tell my story as part of the annual training … Continue reading

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Welcome to Bizarro World

So, Hope had her checkup with the endocrinologist today.  She has not gained any weight since her last visit.  She grew an an inch, but no weight gain.  On top of that, at her last endo visit, she had only … Continue reading

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Relief

The last couple of days have been all about Prader-Willi around here and I’m glad to say that they are over.  Last night we had our very first Prader-Willi Symposium, organized by our local support group.  The pediatric geneticist that … Continue reading

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Getting my act together

I think I’ve wallowed long enough.  I’ve felt defeated, hopeless, and overwhelmed a lot lately and I’ve given in to the temptation to just stubbornly feel sorry for myself — no matter how childish or irrational it is to behave … Continue reading

Posted in Postcards from Holland, PWS | Tagged , | 3 Comments

11

So…today is Hope’s 11-month birthday.  One more to the big o-n-e. Yesterday we went to our Prader-Willi Clinic with Dr. Cassidy.  Everybody is pleased and amazed with Hope’s progress.  Her head control is great, her trunk control is getting better … Continue reading

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Sprouting

All of the sudden Hope has decided to grow up.  I mentioned a few of her most recent accomplishments last week, to which I can now add two more:  she has made it abundantly clear that she has had it … Continue reading

Posted in In the Kitchen, Postcards from Holland | Tagged , , , , , | 1 Comment