Tag Archives: feeding challenges
and now, the shocking conclusion!…. But things weren’t all normal. Hope never cried. One of the quirks of Prader Willi. When she finally had the traditional “1st Birthday Party Meltdown” it was the first time that most of the family … Continue reading
First off, what a relief — Hope gained .87 ounces per day since we last saw the nutritionist about three months ago. Her goal “range” was .4-.9 ounces per day. She only weighs about 21 1/2 pounds but she’s “back … Continue reading
Long runs are hard. You just kind of have to keep plodding along, trusting that if you just keep moving forward, you’ll end up at that place where it will all be worth it.
Remember this picture? from this post, way back when? Well, since then, Hope has gained — oh, I don’t know, about 3 pounds. Guess how many I’ve gained? Enough to lead to this…. For the record, the “Giant Book of … Continue reading
We’re back on the bottle. The baby bottle that is. And by “we,” I mean Hope. Why the bottle? First, she’s willing to take the bottle again — where for awhile she wasn’t; and second, she sucks more efficiently from … Continue reading
So, Hope had her checkup with the endocrinologist today. She has not gained any weight since her last visit. She grew an an inch, but no weight gain. On top of that, at her last endo visit, she had only … Continue reading